Easy Surgery....Right!

Surgery was the 5th.  J did great.  No oxygen problems, the tunneling of his stoma was a success.  Dr. Surgeon was happy.  What could go wrong?

Welcome to our world.  If anyone says, oh...I know what you are going through, I think at this point I'd punch them in the face.  Or better yet, the quote of "my child has the same stomach issues"..Really, sorry, but J is unique.  The surgeon even said so.  That no one...even back east has never hear of this happening 7 times! 

We were suppose to come home on the 7th if all looked good and for sure on the 12th without a doubt.  Well, J decided to go a different route.

Last Friday, the interns said all was looking well, but then I voice my concern to the surgeon and he agreed with me that all wasn't looking well.  J's stoma had turned a different color and was hard.  Not a good sign, so the doctor put a catheter in the stoma and Mt. Helen erupted. Not going home.  Over the weekend he was doing better, still on a liquid diet until Tuesday night when he could have mash potatoes.  He only ate a little, but he ate.  Now we are on the 12th and still at the hospital.  Josh ate a little here and there, everything was still looking good.  Thursday...he still was eating, Dr. Surgeon said if he continues to look this good, he can go home tomorrow, meaning Friday.  WRONG!!!!

Thursday night, he decided to throw up.  I mean everything...he was storing.  GROSS!

He was very weak.  Then we just spiraled down.  Oxygen dropped, heart rate increased, blood pressure rose (which is a first, J usually has extremely low to almost average blood pressure) The respiratory people came, the on call doctor came, we had chest x-rays, blood work.  Yah.  Then I held the oxygen mast on J over night, the whole night!

In the morning (Friday, we aren't going home) they told us that because of his stats being not good we were being moved to the IMCU, not the SICU which is the surgical ICU because he needed all the monitors, tubes, and 24/7 nurse watch.  Awesome!

They drained his lungs, black stuff came out...pneumonia. Then they put a tube down his nose into him gut to drain that.  Evidently, there was a blockage in his newly made tunnel that needed some attention.  Once we were put in our newly, no view room, we went to radiology where they did an enema in the stoma.  Weird and gross and all levels.

By putting the dye in, they were able to look and see and through the enema, the blockage was fixed...at least that is what they think.  

So here it is Saturday, a week and a half later...we are still in the hospital, we have to be moved by to a regular room before we get to go home and J has to be able to eat normal food.

It's like a bad dream that KEEPs reoccurring!!!!