More Testing

 This was the day where we were going to see what J was having done to help his chronic BM problem.  He was excited (actually I think he was thinking he was going to school, because he took his hat off and laid his little guys in his hat) I told him he could wear his hat and take his "little guys" with us.  We got some gas and then as we entered the freeway I told J we were going to the doctor's.  He was more interested in going under the bridge and catching the cars.

As we checked in and they were doing vitals on J, a nurse (maybe a 1st year or a 1st day) asked me a silly question.  I was hoping the doctor wasn't this "silly"  The question that was asked was, "When did J get his disabilities?"  What?  I have never been asked that.  I seriously didn't know.  I replied, "You mean his Autistic and Mental Retardation?"  Silence...then I said, "You mean when he was diagnosed?"  Yah, I'm sure that is what she meant...silly nurse!

The doctor came in and started asking about the test J had done but used words that had more vowels, letters then I had heard before.  So I simply asked him to please say them in "Lamans" terms...

He did and I was relieved.  We went through J's pass and things that had been done in CO as well as here.  There is really no easy answer.  2 types of surgery were given.

1st - a procedure where they insert a tube directly into his colon and the golytyel will be given that way so that it can quickly dissolve the BM's faster.

or...

2nd - remove the colon which means he would wear a bad (I'm guessing)

I asked the doctor if there was a surgery where they could just remove the colon that isn't working and reconnect it to the part that is...NOPE.

Hmmmmm...

There isn't an easy fix.  I told the doctor, that I knew that, there is never an easy fix when it comes to J.  He is not a text book person!

The doctor wants to run 2 more test...the swallowing of the "Lego" pill and get his stomach x-rayed on the 3rd and 5th day instead of what we had done previously where we just got it x-rayed on the 5th day.

He also wanted J to have a test done where they put this cream on his rectum and watch him poop.  I asked how in heaven's name does he think they will accomplish this.  J isn't potty trained.  I told him how we get J to use the restroom and that it was a hit or miss when it came to BM's  So we are NOT doing that test.

The last test will be where they insert a small tube in the rectum and see how the muscles work.  This will be while J is awake.  I told the doctor he'd better have nurses to help hold him down and he replied, "Really?"  bahahaha!

There is no way J would let that happen while being awake.  So I told him I'd bring my son and we'd handle it.  He was concerned that J would get hurt while being held down and I told him the only people that might get hurt would be my son and I...but we were use to it...(need to buy yucky shirts!)

So here is the timeline:

Next week I have to take him off most of his laxative meds (behavior will be NOT FUN!) we have the x-ray's done and the muscle test done...that means he will miss Wednesday school.  Then we'll start all the laxatives and enemas on Friday night after the last x-ray.  We have an appointment with the doctor again to discuss the results on the 19th of October...

He has told me that usually surgery will be schedule no later then 6 weeks out...That would mean Thanksgiving week!  JOY!

This doctor also said that he would personally take care of J and that the residents won't be involved.  I have nothing against residents but J is not a learning tool.

Any questions?  UGHHHHH!